M-Power New York City: Community Workshop
Know the risks and symptoms of multiple myeloma, the most common blood
cancer in African Americans, and how to get the best care.
The International Myeloma Foundation’s M-Power Project Workshop for Health Equity in Myeloma in NY
The M-Power New York workshop took place at Riverside Church and Grace Baptist Church in New York, discussing multiple myeloma and its impact on the African-American community. It is organized by the International Myeloma Foundation in partnership with Memorial Sloan Kettering Cancer Center. The event aims to bridge the health disparity and empower people to make a change. The event is held at Riverside Church and Grace Baptist Church in New York, in partnership with Memorial Sloan Kettering Cancer Center. Dr. Joseph Mikhael, the Chief Medical Officer of the International Myeloma Foundation, serves as the host of the event.Focusing on awareness of multiple myeloma in the African American community and living a healthier life.
The M-Power Project realizes the IMF Diversity Initiative’s vision, enhancing outcomes for African-American myeloma patients. Though the most common blood cancer in this group, with reduced barriers to diagnosis and treatment, they fare as well as or even better than white individuals. Empowering healthcare professionals, community leaders, neighborhoods, and families, M-Power raises myeloma awareness.
With support from:
AbbVie, Amgen, Bristol Myers Squibb, Genentech, GSK, Janssen, Karyopharm Therapeutics, Pfizer, Sanofi, Takeda Oncology, The Binding Site, and 2seventy bio
of all cases of myeloma are in African Americans
more common in African Americans
of all newly diagnosed myeloma patients will be African American
Did you know that myeloma is the most common blood cancer in people of African descent? But doctors do not typically check people for myeloma during a regular visit because currently there are no national screening recommendations for myeloma.
That’s why it’s important to learn the early symptoms of myeloma and let your doctor know that you—or a friend or family member—are at added risk for the disease.
Because even though myeloma affects African Americans at greater rates, with early diagnosis and treatment, African Americans can have better overall survival in living with the disease.
Myeloma Made Simple
If you’re new to myeloma – or looking for a quick refresher course – IMF Chief Medical Officer Dr. Joseph Mikhael runs through what you need to know in this short video.
Understanding the Language of Myeloma
Myeloma is a complicated disease, but the language that describes it doesn’t have to be. Here is a list of words and phrases commonly used in discussions about myeloma.
Early Signs of Myeloma
This Tip Card covers early diagnosis and warning signs of multiple myeloma.
Find a Support Group
Support groups bring together myeloma patients, caregivers, family members and friends. Patients involved in a support group experience more positive outcomes due to their understanding of treatment options and ability to have key conversations with their health-care team.
Have You Been Diagnosed with Myeloma?
Multiple myeloma is a highly treatable disease. Many patients live long and productive lives after diagnosis.
Myeloma Treatment Discussion Tool
This tool was developed in collaboration with myeloma patients and caregivers, leaders of myeloma support groups, and the IMF Nurse Leadership Board. Discuss this tool with your treatment team and healthcare providers.
To make good decisions about your care with your health-care team, learn as much as you can about myeloma and its treatments.
A comprehensive list of caregiver support and other helpful resources especially for families and caregivers.
Drug Reimbursement Information and Assistance
List of pharma, government and other resources regarding drug reimbursement information and assistance
A Day in the Life –
Terrence and Toni Green
You’re listening to A Day in the Life Podcast, brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience for those in the myeloma community and beyond. Today we’re talking to myeloma patient Terrence Green and his spouse and care partner Toni Green.
Abstracts on racial disparities in myeloma care
IMF Chief Medical Officer Dr. Joseph Mikhael (TGen, City of Hope — Phoenix) talks about abstracts on racial disparities in myeloma care as reported from this year’s American Society of Hematology (ASH) annual conference held in Atlanta, GA.
Patient advocate Yelak Biru shares his story
Diagnosed at the young age of 25 with stage III multiple myeloma, Yelak Biru is a patient turned myeloma research advocate. Working with a team of medical practitioners and educating himself through support group leadership, information resources, advocacy sites, social media, and the IMF, Yelak has successfully integrated myeloma to his life for over two decades.